Rare Patient Voice President and Founder Wes Michael
Rare Patient Voice began as a clearing house for information for people with rare and unusual diseas...
Privacy & Cookies Policy
on or through the Website.
in email, text, and other electronic messages between you and any Website or us.
us offline or through any other means, including on any other website operated by us or any third party (including our affiliates and subsidiaries).
any third party(including our partners), including through any application or content (including advertising) that may link to or be accessible from the Website
3. Contact Information
Cure Medical, LLC
3471 VIA LIDO, SUITE 211 NEWPORT BEACH, CA 92663
or call us at our toll-free number: 800.570.1778
4. Children Under the Age of 18
Our Website is not intended for children under 18 years of age. No one under age 18 may provide any information to any Website. We do not knowingly collect information from children under 18 and do not direct our Website for use by individuals under the age of 18. If you are under 18, do not use or provide any information on the Website or on or through any of its features/register, make any purchases through the Website, use any of the interactive or public comment features of the Website or provide any information about yourself to us, including your name, address, telephone number, email address, or any screen name or user name you may use.If we learn we have collected or received personal information from a child under 18 without verification of parental consent, we will delete that information.If you believe we might have any information using cookies from or about a child under 18, please contact us at firstname.lastname@example.org and we will promptly remove the information.
5. Information We Collect About You and How We Collect It
We collect several types of information from and about users of our Website, including information:
by which you may be personally identified, such as your first and last name, postal address, e-mail address, telephone number, IP address, or employment history (when you apply to work for us)(“Personal Information”);
that is about you but individually does not identify you, such as your history of requesting products or services from us; and/or
about your internet connection, the equipment you use to access our Website and your usage of the Website. We collect this information:
directly from you when you provide it to us;
automatically as you navigate through the site. Information collected automatically may include usage details, IP addresses, and information collected through cookies, web beacons, and other tracking technologies; and from third parties, for example, our business partners.
5.1. Information You Provide to Us. The information we collect, including Personal Information, on or through our Website may include:
Information that you provide by filling in forms on our Website. This includes information provided at the time of registering to use our Website or subscribing, requesting, or using services or products we offer. We may also ask you for information when you report a problem with our Website or ask us a question.
Records and copies of your correspondence (including email addresses), if you contact us.
Your responses to surveys that we might ask you to complete for research purposes.
Your employment history when you decide to apply for a job with us.
Details of transactions you carry out through our Website and of the fulfillment of your orders.
Your search queries on the Website.
While it is your choice whether to provide the requested information or not, we cannot provide certain services you may request if you do not provide the requested information.
5.2. Information We Collect Through Automatic Data Collection Technologies and Do-Not-Track Signals. As you navigate through and interact with our Website, we may use automatic data collection technologies to collect certain information about your equipment, browsing actions, and patterns, including:
Usage Details. Details of your visits to our Website, including
traffic data, logs, and other communication data and the resources that you access and use on the Website.
Device Information. We may collect information about your computer or mobile device and internet connection, including the device’s unique device identifier, IP address, operating system, browser type, and mobile network information.
Stored Information and Files. The Website also may access metadata associated with your device.
Location Information. The Website does not collect real-time information about the location of your device, but when you submit forms to us, our systems automatically collect the country, state/province, and city location data associated with your IP address. If you do not want us to collect this information, please do not submit any forms to us.
We also may use these technologies to collect information about your online activities over time and across third party websites or other online services (behavioral tracking).
Do-Not-Track is a public-private initiative, https://www.w3.org/2011/tracking-protection/, that has developed a technical “flag” or signal that an end-user may be able to activate within their browser software to notify websites that they do not wish to be “tracked” by third parties as defined by the initiative. The initiative, however, has not reached a consensus as to exactly what technical or other actions those parties receiving the signal should take. As a result, Do-Not-Track has not yet been standardized and most websites, including our Website, and we do not alter our or Website’s behavior or change their services when their websites receive a “do-not-track” flag or signal.
The information we collect automatically may include Personal Information (such as your IP address or information collected from our use of “cookies”) and we may maintain it or associate it with Personal Information we collect in other ways or receive from third parties. It helps us to improve our Website and to deliver a better and more personalized service, including by enabling us to:
Estimate our audience size and usage patterns.
Store information about your preferences, allowing us to customize our Website according to your individual interests.
Speed up your searches.
Recognize you when you return to our Website.
The technologies we use for this automatic data collection may include:
Web Beacons. Pages of the Website and our e-mails may contain small electronic files known as web beacons (also referred to as clear gifs, pixel tags, and single-pixel gifs) that permit us, for example, to count users who have visited those pages or opened an email and for other related website statistics (for example, recording the popularity of certain website content and verifying system and server integrity)
We do not control these third parties’ tracking technologies or how they may be used. If you have any questions about an advertisement or other targeted content, you should contact the responsible provider directly. For information about how you can opt out of receiving targeted advertising from many providers, see Section 9(Choices About How We Use and Disclose Your Information).
7. How We Use Your Information
We use information that we collect about you or that you provide to us, including any Personal Information:
To present our Website and its contents to you.
To provide you with information, products, or services that you request from us, for example when you download content, request content, or sign up for a webinar or other event.
To fulfill any other purpose for which you provide it.
To provide you with notices about your, including products, services, or information you have requested.
To notify you about changes to our Website or any products or services we offer or provide though it.
To allow you to participate in interactive features on our Website.
In any other way we may describe when you provide the information.
As set forth in a separate agreement between you and us.
To improve the Website by solving technical problems, to calculate overall usage statistics, for internal marketing and promotional purposes, and for service development and content improvement.
To maintain the security and integrity of the Website and our IT systems.
For any other purpose with your consent.
We may also use your information to contact you about our own goods services that may be of interest to you. If you wish to stop receiving certain emails, please click the “unsubscribe” link at the bottom of the email or notify us by email at email@example.com. For more information, see Section 9 (Choices About How We Use and Disclose Your Information).
We may use the information we have collected from you to enable us to display advertisements to our target audiences. If you click on or otherwise interact with an advertisement, we may assume that you meet its target criteria.
We will retain your Personal Information for as long as necessary to fulfill the purpose(s) for which it was collected and to comply with applicable laws, and your consent to such purposes(s) remains valid during such time. When Personal Information is no longer needed or legally required, it will be permanently deleted or de-identified so that it can no longer be associated with a specific individual. We annually review our data and delete data that is no longer necessary.
8. Disclosure of Your Information
We may disclose aggregated, non-personally identifiable information about our users, and information that does not identify any individual, without restriction.
To our company.
To contractors, service providers, and other third parties we use to support our business and who are bound by contractual obligations to keep Personal Information confidential and use it only for the purposes for which we disclose it to them.
To a buyer or other successor in the event of a merger, divestiture, restructuring, reorganization, dissolution, or other sale or transfer of some or all of our assets, whether as a going concern or as part of bankruptcy, liquidation, or similar proceeding, in which Personal Information held by us about our Website users is among the assets transferred.
To fulfill the purpose for which you provide it. For example, if you give us an email address to use the “email a friend” feature of our Website, we will transmit the contents of that email and your email address to the recipients.
As set forth in any separate agreement between you and us.
For any other purpose disclosed by us when you provide the information.
With your consent.
If we believe disclosure is necessary or appropriate to protect the rights, property, or safety of us,our customers, other users, service providers, or others. This includes exchanging information with other companies and organizations for the purposes of fraud protection.
9. Choices About How We Use and Disclose Your Information
We strive to provide you with choices regarding the Personal Information you provide to us. We have created mechanisms to provide you with the following control over your information:
Promotional Offers from us. If you do not wish to have your email address used by us to promote our own products or services, you can opt-out at any other time by unsubscribing from communication emails or sending us an email stating your request to firstname.lastname@example.org. This opt out does not apply to information provided to us as a result of a product registration, product service experience, or other transactions.
10. Accessing and Correcting Your Information
You can review and change your Personal Information clicking “update preferences” at the bottom of the emails we send you.
You may also send us an email at email@example.com to request access to, correct or delete any Personal Information that you have provided to us. We may not accommodate a request to change information if we believe the change would violate any law or legal requirement or cause the information to be incorrect.
11. Your California Privacy Rights
California Civil Code Section § 1798.83 permits users of our Website that are California residents to request certain information regarding our disclosure of Personal Information to third parties for their direct marketing purposes.
California residents may also request, after we have verified your identity, (i) the Personally Identifiable Information we have collected about you, (ii) the categories of Personally Identifiable Information we have collected from you and that we share for our business purposes, (iii) the third parties with who we share your Personally Identifiable Information, (iv) our commercial purpose for collecting the Personally Identifiable Information, and (v) the categories of sources from which we collected your Personally Identifiable Information. California residents may request, free of any charge (unless we are allowed by law to charge a fee), the Personally Identifiable Information we have collected from you through your account with us or, if you do not have an account with us, electronically or by mail at your option. Please note that California law prohibits us from discriminating against you if you exercise your rights under this Section.
You may also request that we and our service providers delete your Personally Identifiable Information, provided that we are not required by California law to delete your Personally Identifiable Information under certain situations, such as: (a) your Personally Identifiable Information is necessary for us to provide you with goods or services you have requested or we reasonably anticipate you to request (for example, an on-going monthly subscription you have not cancelled) or as necessary to perform a contract between you and us, (b) your Personally Identifiable Information is necessary for us to protect against malicious or illegal activity, (c) your Personally Identifiable Information is necessary for us to identify and repair errors with our existing functionalities, (d) we use your Personally Identifiable information solely for internal uses that are reasonably aligned with your expectations based on your relationship with us, (e) your Personally Identifiable Information is necessary for us to comply with a legal obligation, or (f) we otherwise use your Personally Identifiable Information lawfully and in a manner that is compatible with the context in which you provided your Personally Identifiable Information.
To make a request the information we have described in this Section or make any other requests under this Section, please see Section 3 (Contact Information).
12. Data Security
We have implemented measures designed to secure your Personal Information from accidental loss and from unauthorized access, use, alteration, and disclosure.
The safety and security of your information also depends on you. If we have given you (or where you have chosen) a password for access to certain parts of our Website, you are responsible for keeping this password confidential. We ask you not to share your password with anyone.
Unfortunately, the transmission of information via the internet is not completely secure and can potentially be intercepted or incorrectly routed. Although we do our best to protect your Personal Information, we cannot guarantee the security of your Personal Information transmitted to our Website. Any transmission of Personal Information is at your own risk. We are not responsible for circumvention of any privacy settings or security measures contained on any Website. Please consider this before submitting any information to us or through the Website.
13. Social Media
14. Monitoring and Enforcement
Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. It is mandatory to procure user consent prior to running these cookies on your website.